OSSE

Open Source Registry System for Rare Diseases

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Project Partners

Goethe-University Frankfurt / University Hospital Frankfurt

Institute of Medical Informatics
Prof. Dr. Holger Storf

Frankfurter Referenzzentrum für Seltene Erkrankungen (FRZSE) / Abteilung Pneumologie/Allergologie
Prof. Dr. T.O.F. Wagner

German Cancer Research Center (DKFZ)

Division of Federated Information Systems
Prof. Dr. Martin Lablans

Mainz University Medical Center

Institute for Medical Biostatistics, Epidemiology and Informatics (IMBEI)
Medical Informatics Division

Gefördert duch das Bundesministerium für Gesundheit aufgrund eines Beschlusses des Deutschen Bundestages.